Open Science (Opsci) Data Wallet
Updated 1031 days ago
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Updated 1031 days ago
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Data management with the Opsci Data Wallet flips the data economy on its head and gives data sovereignty back to the creators - research participants - and empowers researchers with tools for interoperability, sharing, and reproducible workflows.
Description
Neuroscience datasets are some of the most valuable in existence, in terms of the answers they contain about incurable diseases such as dementia, and human suffering such as depression and chronic pain. They’re often collected over many years, through hundreds of scientist hours and time volunteered by participants.
Currently, most of these datasets are siloed in centralised databases (e.g. universities and hospitals) all over the world. In some cases, data may be kept on personal hard drives. Unleashing this data to build a data commons for global scientists have been met with resistance by misaligned incentive structures. Scientists are not incentivised to share their data open-source with their peers, nor are participants incentivised to take part in the research. As a consequence, this valuable data is vulnerable to loss and corruption, and scientific collaboration is difficult and participants hard to recruit. Furthermore, participants do not retain ownership over their data, and revoking consent/permissioning is high friction and complex process.
Team Information
Shady El Damaty, Ph.D., was born in Egypt, immigrated to the U.S. for education, and is now founder and product manager for Opscientia's decentralised science stack. He has an extensive quantitative background contributing to methods development and digital infrastructure for neuroscience research.
Sarah Hamburg, Ph.D., is a neuroscientist and product strategist from the U.K. with years of experience in human neuroimaging, user experience research, and product development.
Alexandra McCarroll, M.Sc. (in progress), is a software engineer with a rich history in traditional finance. In her past she has worked with both big institutions an FinTech startups as both a full-stack developer and data engineer.
Liliana Muscarella, M.A., is Opscientia's social impact strategist from the U.S., bringing four years of research and project management experience on humanitarian aid and development programs at the United Nations, USAID, and international NGOs.
Daniel Byington, M.Sc., is a business development specialist from the U.S. with a rich background in market and scientific research for pharmaceutical drug development.
Miri Rossitto is the CEO of COWE Communications and is Opscientia's brand management strategist from the U.S. with 10 years of experience consulting and advising successful start-ups.
Achintya Kumar, is Opscientia's Open Web Fellow from India, who is applying his web development skills to build the DeSci Stack.
Kinshuk Kashyap, is Opscientia's Google Summer of Code Fellow from India, who was awarded a competitive summer fellowship to contribute to the DeSci Stack.
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